Sunday, May 5, 2013

The three best letters in the alphabet

What comes after A and B? CDE, of course.

Photo from my actual test results :)

Which is what I am now. After almost 7 years of going back to college, completing an internship, working full time as an educator with PWDs, and studying - the day finally came when I could take the certification exam.

Being completely honest, despite all the studying I did, that was a hard test. The questions aren't straightforward "test your knowledge" questions. They were very convoluted and focused on your problem solving. When you looked at the possible answers, really any of them would have sufficed. Technically, they were all correct. But you have to select which one is best. Frankly, my idea of "best" may vary from yours. The exam was designed to trick you. Really, my personal experience as a PWD wasn't beneficial at all. If anything, it kind of confused me more.

But I passed. I did very well.

It's over.

That's all that matters. :)

*exhale*

"Two roads diverged in a wood and I, I took the one less traveled by. And that has made all the difference." ~Robert Frost, The Road Not Taken 

Saturday, April 13, 2013

The Greatest Trick

I've been struggling lately. A lot. I have good days and bad - some better than others. But for the most part, I just feel sad. Really sad.

I have a lot to be excited about - the CDE exam will be coming up in the next month or two as exam dates are May and June. The completion of that test will close the door on the biggest goal I have ever set for myself. I can retire after that exam because I really have no other career ambitions (although I'm sure I'll think of some).

I also have a lot to look forward to - my niece was born mid-November, and she's the cutest, most precious thing - a ball of chubby cheeks, grabby hands, red hair, and adorableness. Watching her grow and having the opportunity to babysit her is the highlight of my week.

But I find myself deriving less and less joy out of my days. Getting out of bed is a chore. My alarm goes off at 6:15 in the morning, and I roll out of bed somewhere between 7:15 and 7:30 am. I'm supposed to be to work at 8:00 a.m. Thankfully (kind of), I also work a lot of overtime so modifying my hours to accommodate is accepted. I don't sleep much - if at all. There are nights I'll crawl into bed absolutely exhausted, nearly in tears from how tired I am, then toss and turn for the next 6-8 hours. A few times I've put myself to bed at 8pm, only to lay there and stare at the ceiling.

Original image credit
My thoughts of late are dark. I always find something to pick at - why don't I have any friends? I'm ugly. How can you be a good dietitian when you're fat? Do my co-workers make fun of me for being overweight and working in a weight management clinic? My complexion is gross. I fail at everything I do. Why don't my neighbors talk to me? Am I uncomfortable to be around? Those clothes look hideous on me. It's honestly a merry-go-round of self-deprecating thoughts that never end. Hey, kid? I'd like to get off this ride now. Stop spinning.

Pills don't do much. Therapy hasn't helped in the past. Shutting off my brain, or at least putting it on sleep mode, is a near impossibility. Always moving. Always spinning.

Then there are those good days. Days where I laugh and smile and enjoy the world again. Days where I think, "Yeah. I can do this. I'm going to be ok." And I begin to believe I'm moving past the hump (that hump is me curled up in the fetal position). Maybe, I'm moving towards the sunshine and out of the storm.

Not this one. (Image credit)
But there's always a demon - a devil - inside my head finding a way to drag me down. Just when I think it's safe to be happy again - just when I think it's gone. It suddenly feels as though I'm crawling along at turtle speed with chains wrapped around me. Like Jacob Marley from the Charles Dickens book, A Christmas Story. But not the Disney version with Goofy Marley. The real Jacob Marley. All sullen and dead. Sometimes, that's me.

On the outside, no one would ever guess the games being played inside my head. No one would know. I have a feeling most people don't know. That's why I blog about it. It's important for people to recognize the power of depression. I don't always give it the credit it deserves. I brush it off with an, "I'm fine" and pretend to go about my ways. But it does hold power. When there's a shark attack, some people are afraid of the ocean for awhile. After the "all clear" signal has been given, and just as you dip your toe in to test the water again, it attacks with brute force. Depression pretends to have gone. But it hasn't. It's always lurking. Just waiting. To pull you under.

I fear reaching the point where I go under water without yelling for help.


Please be warned of strong language in the clip

  "The greatest trick the devil ever pulled was convincing the world he didn't exist." ~The Usual Suspects

Friday, April 5, 2013

The one where you get really excited

**Please note: Details of this post have been edited to reflect recent changes. 

DProm has long been a topic of discussion during Wednesday evening DSMA (diabetes social media advocacy) chats. Last Wednesday, something interesting happened...

I decided I was done with talk. DProm is actually happening. While, of course, I am only in the very early (read - very, very early) stages of planning, here is what I have so far (tentatively):


  • April/May 2014
  • 7pm-midnight
  • Springfield, IL
  • 21 years and over only
  • There will be a cover charge for entrance (any money raised over the cost of the event will be donated to the American Diabetes Association)
  • Attire is whatever you want it to be - come as casual or as formal as you like (personally, I like glitter)

I have lots of ideas, but I honestly can't plan something this large completely on my own. Here is what I could use from the DOC... I'm forming a DProm Committee. I need interested parties who are willing to lend their talents to the following areas:

  • Venue
  • Food
  • Games/prizes
  • Decorations
  • Marketing/social media (I already have a Facebook, Google+, and Twitter page started)
  • DJ/Photography
Also, if anyone has any experience with corporate sponsorship, I would like to speak with you. 

Please keep in mind all positions are voluntary. 

If you have any questions, comments, concerns, or suggestions please feel free to email dprom1921@gmail.com. You may also visit the current social media pages for updates (please remember I'm not all that great at these kinds of things, and that's why I REALLY need your help). You can visit DProm on Facebook, Twitter, and Google+.

Dance it out, bitch.

"On with the dance! let joy be unconfined;
No sleep till morn, when Youth and Pleasure meet
To chase the glowing hours with flying feet."
~George Gordon, Lord Byron, Childe Harold's Pilgrimage

Friday, March 15, 2013

In Memoriam

I have a friend who loved the Green Lantern (and many other superheroes). He wore a Green Lantern ring - even the day he died. While Skippy and I weren't best friends, he was someone I was glad to have around. So, in a way, this is a small tribute to him... of sorts.

I got a new insulin pump, and I just have one thing to say...

So long, Ping Diddy...



Hello, Ping Lantern!


In brightest day, in blackest night,
No blood sugar shall escape my pump site.
Let those who worship Diabetes might
Beware my insulin, Ping Lantern's light!

"In brightest day, in blackest night, no evil shall escape my sight. Let those who worship evil's might beware my power, Green Lantern's light!" ~Hal Jordan, the Green Lantern

Thursday, March 14, 2013

Soundtrack of our lives

I found a new song for the DOC. I've been on a Mumford & Sons kick, and I really enjoy this song (Timshel). Replace the word "death" with "diabetes" and the lyrics are nearly perfect (lyrics below the video).





"Timshel"

Cold is the water
It freezes your already cold mind
Already cold, cold mind
And death is at your doorstep
And it will steal your innocence
But it will not steal your substance

But you are not alone in this
And you are not alone in this
As brothers we will stand and we'll hold your hand
Hold your hand

And you are the mother
The mother of your baby child
The one to whom you gave life
And you have your choices
And these are what make man great
His ladder to the stars

But you are not alone in this
And you are not alone in this
As brothers we will stand and we'll hold your hand
Hold your hand

And I will tell the night
Whisper, "Lose your sight"
But I can't move the mountains for you

Thursday, February 14, 2013

Food for Thought

As I did some research for a few of my clients, I came across The Center for Mindful Eating, which fits in line perfectly with things I have previously discussed here at C's Life (Intuitive Eating, Competent Eating, Health At Every Size, etc). 

As I'm sure you're all aware, today is Valentine's Day. For those of us with no human Valentine (yes, I have a fluffy puppy who loves me dearly - not the same, though) to share today with, it can be a pretty boring and lonely day. As I cruised through some of the newsletters offered through the Center for Mindful Eating, I came across a few articles focused on loneliness. They were so profound, I felt like I needed to share them with everyone - especially those, like me, who find today a slightly cruel reminder of everything I'm missing out on.

Read on. 



The Heart of Loneliness 
By Char Wilkins, MSW, LCSW

Many of our patients and clients don't know they are lonely. Loneliness is an emotion no one likes to experience.  Underneath loneliness is fear, and fear is too overwhelming an emotion to even consider. Loneliness is such an isolated, disconnected and painful experience that people will do almost anything to avoid feeling it. Many people either binge eat or restrict eating to avoid this pain.

Most people don’t want to be perceived as lonely or admit to themselves that they feel lonely at times. Whereas an emotion like anger might “fill” us, loneliness tends to “drain” us, and we feel bottomless and hollow, an aching, scary emptiness. Often the underlying reason people overeat is because they  are trying to use food to fill the emptiness they feel inside. Lost in the complexity of a disordered eating pattern, they feel hopelessly trapped and ashamed. But because loneliness is often masked by other emotions, it’s challenging to uncover. It often masquerades as anger – anger about having no willpower, anger at the food, the media or a loved one who insists on bringing home her favorite crème-filled chocolates to “cheer her up,” or anger about family or work pressures.

Pam, a 56-year-old highly capable administrator of a large organization, found herself at yet another obligatory after work event for “political” reasons. She tried to look happy and engaged, but there really wasn’t anyone she wanted to connect with, especially about work-related topics. Striking up a conversation with a stranger felt like more effort than she could muster after an exhausting day at work. She was tired and just wanted to get home and fall into bed.

Of course, as with most after work events, there were buffet tables full of platters of food. It was the dessert table that called to her. She described the array of sweets as being luminous and pulsing, like a siren luring her, calling, “Eat me.” She looked at all the possibilities of “soft” foods as she called them, the foods that soothed and numbed the all-too familiar restlessness she was experiencing. This evening, however, she was able to slow the drive toward the laden dessert table by shifting her attention to mindfulness of the body. She noticed the physical sensations in her body: tightness in her chest, shrinking feeling in her arms, stomach and heart. As best she could, she kept her attention on those sensations, not thinking about them, just lightly observing them with curiosity and without judgment. She allowed them to be felt and known. It was difficult to stay with them, but as the sensations changed and faded, she became aware that she felt lonely and sad standing there. She thought that she was just angry about having to show up at yet another event when she really wanted to be home, but through mindful awareness, she had insight into her underlying loneliness and sadness.

Loneliness is a hole in the heart that food will never fill.

To avoid feeling loneliness, people ignore, numb or push away any signals that suggest there is a restlessness or uneasiness in mind, heart and body. It’s important to recognize that this is a form of self care. Even though it does not arise from awareness, and is likely based in habitual and reactive patterns, it is the best way clients know how to endure the discomfort they are experiencing. Seeing these destructive behaviors as habituated coping skills rather than resistance can help professionals have a better understanding of their clients' struggles and to be more patient and compassionate.

Although each person experiences the physical sensations of loneliness differently in their body, many people often report feeling hollow and empty, and having a withering or shrinking sensation in their arms, chest or stomach. These descriptive words are also often used when people are feeling afraid. Becoming mindful of body sensations can be a starting point for turning toward what is often so difficult to be with: the realization that we are often alone and lonely.

You might begin by simply suggesting that your client bring her attention to noticing if there are any physical sensations in her body as she speaks of her despair about her eating binges or restrictions. Many people are so disconnected from their bodies that at first this seems to be an outrageous request and impossible for them to do. It helps to reassure them that there is no right way to feel, no particular sensation to have. Just being present with what they are feeling in the moment is a step toward becoming a tiny bit more comfortable with emotions that they have been afraid to feel all their life.

Here’s the discovery that one client made:  I have been working on sitting with my emotions, a completely foreign concept tome, in therapy. One particularly challenging day, I cried my way through therapy as we sat with my loneliness, sat noticing all the physical sensations that came along with my emotions and thoughts. I had not previously been aware
that I was feeling lonely. 

It might seem that there is no connection between disordered eating patterns and sitting with the physical sensations in the body that arise from difficult thoughts and feelings. Such an exercise might seem like a waste of time to your patient and even to you as her counselor, dietitian, nurse or doctor. However, uncovering and sitting with difficult emotions is the first step away from the automatic habit of “treating” distressing emotions by eating. The second step is a step forward, listing and using a variety of options for self-care that do not involve eating. These steps, practiced many times with our encouragement, can help our clients shift from thinking that they must give up their best friend – food – to befriending themselves, and moving into a realm of greater freedom, freedom to make better choices and to enjoy a healthier life.

-Char Wilkins, MSW, LCSW, is a mindfulness-based psychotherapist specializing in women’s issues. She is a certified MBSR instructor and trains professionals nationwide in the use of mindfulness skills with clients and patients. Contact her at www.info@amindfulpath.com.



Overcoming Loneliness
By Donald Altman, M.A., LPC

Loneliness may be one of the biggest causes of emotional eating. Sometimes, it’s difficult to know that this emotion is even the culprit. If you often eat when alone, or even avoid eating with others and prefer to remain isolated, loneliness has to be considered as one of the usual suspects that results in unbalanced eating behavior. If you eat when lonely or bored, then loneliness is eating at you. Fortunately, it doesn’t have to be that way. What follow are three steps to coping with the loneliness in a healthy way.

The first step is to sit with the uncomfortable feeling and clearly identify the emotion it represents. If you haven’talready identified this feeling as loneliness or boredom, allow yourself to sit with the feeling until you can give it a name. Take as much time as you need and be patient with yourself. Take a break and try another time if it’s too difficult to do this at one sitting. You may find that the simple act of being present with the feeling and giving it a name can give you some immediate relief.

Step two involves using the awareness you have gained by naming the feeling to engage in a healthier coping skill. If you are feeling lonely, then you need to do something about it. Get out a sheet of paper and write down a short action plan. This could include such things as calling a friend or making plans to increase your social connections—such as going to a class, a church, or even sitting at a coffee house where you can interact with others. If bored, make a list of all the enjoyable hobbies or activities that you could do in that moment instead of eating.

Step three is where you take action. This includes making calls and scheduling your meetings with others. By doing this, you are taking action to deal with the root issue that is causing mindless eating. As you bring the joy of friendship and supportive resources into your life, you may notice that loneliness is no longer eating away at you—and that’s a good feeling.

-Donald Altman, LPC, is a psychotherapist, former Buddhist monk, award-winning writer, and author of the new book One Minute Mindfulness. Other books include 12-Weeks to Mindful Eating, Meal By Meal, The Mindfulness Code, and Art of the Inner Meal. Donald consults and leads mindfulness workshops around the country. He currently serves as Vice President of TCME. His website is www.mindfulpractices.com. Contact: info@mindfulpractices.com.



Loneliness and Boredom
By Jan Chozen Bays, MD

Loneliness and boredom are often triggers for eating comfort foods, or for eating at inappropriate times.

When we feel the impulse to eat at an odd time (such as an hour after lunch or when we can't fall asleep at night ) we can take a moment to investigate what is happening in our body, heart and mind.

We can check within our bodies to investigate if we are actually hungry.
How full does our stomach feel?
Empty? One quarter full? Half full?
Full? Stuffed?

If we realize that we're not actually hungry, we can investigate our feelings and thoughts.

We can check in with our feelings to investigate what emotions might be present.  It helps to become acquainted with the particular body sensations that accompany different emotions. For example, the body signals of loneliness in one person might be a sagging feeling in the eyelids and heaviness in the chest. We find that the body can tell us about feelings of loneliness or boredom that we are not fully aware of.

We can check the background dialogue in our minds. The mind might be subtly murmuring, "I feel so alone. I need to comfort myself with something to eat,  " or "I'm bored. I need some exciting taste sensations in my mouth."

Once we've identified the emotion we are feeling, what can we do?  If the discomfort we are feeling is arising from loneliness,  we can reach out. We can call someone who cares for us.  We can reach out to another person who might be lonely. We can play with a child or pet. We can go outdoors and open our awareness to the company of trees and birds.

If the discomfort arises from boredom, we can challenge the mind that says, "There's nothing going on," by looking directly and carefully at just what actually IS going on. We can sit down for a moment and focus on the breath, curious about the thousands of tiny sensations in and on our body. We can look at a flower close up, drinking in its color with our eyes. We can open our ears to the many sounds, obvious and subtle, that surround us.  We can sip a cup of tea slowly, aware of changes in temperature and flavor. When we are fully present, when boredom is replaced by curiosity, when loneliness is replaced by reaching out to others, our discontent can dissolve and be replaced by satisfaction and ease.

-Jan Chozen Bays, MD is a pediatrician and Zen teacher in Oregon. She is the author of Mindful Eating: A Guide to Rediscovering a Healthy and Joyful Relationship with Food.
                                                                 

Friday, January 25, 2013

How Tandem Diabetes Broke My Heart -or- Why I'm Not Getting a t:Slim

*A note to readers: Please keep in mind as you read this post that my experience with Tandem Diabetes is not typical. It's unfortunate I had such a terrible customer service experience, but you will more than likely not have a similar experience if you were to contact them. Based on conversations I have had with other t:Slim users, they are largely pleased with their service. Please also keep in mind I have never used the t:Slim, so my experience is in no way a reflection of their product. I still very much think the t:Slim is a sleek and sophisticated looking insulin pump. If a pump were capable of having sex appeal, the t:Slim definitely has it.*

When it comes to actually living with diabetes, there's not a whole lot to look forward to. For the foreseeable future, there's a lot of poking, bleeding, swearing, leaking, and face-stuffing going on. I do, however, get excited about new insulin pumps. As Ping Diddy and I approached the end of our 4-year warranty with Animas, I contacted Tandem Diabetes via email to see when their new pump, the t:Slim, would be available for purchase in the US. I was told relatively soon so, against my better judgement, I let my pump warranty expire and held my breath waiting for the announcement. For those of you who are unaware, when your pump warranty expires, you are liable for the full cost of the insulin pump should anything happen to it - including just normal wear and tear. While your warranty is in effect, any issues covered under the warranty are taken care of free of charge - which typically includes a new or refurbished pump being over-nighted to you. Also for those of you who don't know, insulin pumps are expensive. Almost no one has a few thousand dollars laying around to throw towards the cost of a new pump should it break outside of warranty.

The new t:Slim finally came out in September 2012 but circumstances prevented me from being able to upgrade at that time. So I held on until my new insurance kicked in on January 6, 2013. I checked into it and coverage was excellent for durable medical equipment (read: really good). January 7, I contacted Tandem to get the process started. I faxed them copies of my new insurance card, made sure all of my information was up to date with my new Illinois contact information, and filled out paperwork with my (new) endocrinologist's information as well. I was told I would be contacted in 48 hours and to call them if I wasn't.

I waited a week. Then I called them.

After a bit of confusion, I was eventually connected with someone named Anita who told me she would be handling all my information. She "verified" all my contact and insurance information - which was incorrect in the system. I updated all of it again and sent another copy of my insurance card. In a couple days I got a phone call verifying coverage, but for some reason coverage was verified with my previous employer whom I was laid off from in September. I, for a third time, provided my new information and faxed a third copy of my insurance card.

Then I heard nothing for a week.

So I called and left a message.

Then I heard nothing for another week.

Then I got a call from an endocrinologist in Iowa saying they got a prescription request from Tandem, but I'm not their patient, and I would need to contact a different office.

So I called Tandem again.

This time, I was told my case was in transition to another employee. I was transferred to someone whose name I can't remember - Ryan...Peter...something male - and he was a happy, peppy guy. I was feeling unpleasantly NOT peppy. He said he would be verifying my coverage with my insurance company - whom he inexplicably still had as my Iowa employer. Then he called me the wrong name. Twice. I corrected him and he responded, "I thought I was talking to someone else." To which I responded (in my head), "!@#$%^&" I made sure he knew who I was, had my corrected information, and verified I would not need to fax another copy of my insurance card - because I wasn't going to anymore anyway. I also asked why the verification with the correct insurance company hadn't been done already. He didn't have an answer.

Then, 30 minutes later, he already called me back with my insurance verification. I was simultaneously impressed with his speed and displeased that it took 3 weeks for a 30-minute phone verification to happen. Whatever. I sighed and continued - albeit apprehensively.

I waited a few days.

Then I got a phone call, again, from an Iowa endocrinologist saying they again got a prescription request and would need a different office to handle it since I'm still not a patient of theirs.

I called Tandem and cancelled my t:Slim order.

Ping Diddy has been out of warranty for over a year now. I'm lucky it's still usable - although I've been getting some weird alarms lately. Not to mention my dog used it as a chew toy. And the words are rubbing off the buttons. And the screen is scratched...

Customer service, especially when you are a company new to the insulin pump field, is vitally important. If my first experience with you as a company, before I even try your product, is negative - I'm going to have legitimate fears about what will happen after I purchase your pump. If I had a malfunction, would you leave me waiting three weeks without a pump or insulin? Magic 8 Ball says "Outlook not good."

I have spoken positively about Tandem before. They put on the Adults with Type 1 night at FFL12. It was a glorious evening - very well put together. I had a blast. And, let me tell you, those Tandem girls can dance. It was fun. In speaking with other actual t:Slim users, they are very happy with their product. I'm happy for them. I find it incredibly unfortunate I couldn't be one of them.

Tandem Diabetes, you broke my heart. It makes me sad.

"Well done is better than well said." ~Benjamin Franklin